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THE MARFAN MOTHER

Learning and living with a child with a rare diagnosis…

Symptoms and facts about Marfan syndrome - What you need to know about Marfan syndrome

Symptoms and facts about Marfan syndrome - What you need to know about Marfan syndrome

Symptoms and facts about Marfan syndrome - What you need to know about Marfan syndrome

May 164 min read

To be able to fight, something that happens all the time

To be able to fight, something that happens all the time

To be able to fight, something that happens all the time

May 167 min read

Worry, frustration, money and the will to never give up

Worry, frustration, money and the will to never give up

Worry, frustration, money and the will to never give up

Sep 11, 20254 min read

I won't be able to do it soon...

I won't be able to do it soon...

I won't be able to do it soon...

Sep 11, 20251 min read

A conscious absence

Aug 18, 20255 min read

It's been a while since I wrote a post...

It's been a while since I wrote a post...

It's been a while since I wrote a post...

Jun 1, 20243 min read

Action and tears

Action and tears

Action and tears

Feb 12, 20244 min read

I'm feeling tired

I'm feeling tired

I'm feeling tired

Dec 16, 20232 min read

The only salvation to cope with things is to be strong

The only salvation to cope with things is to be strong

The only salvation to cope with things is to be strong

Dec 16, 20236 min read

Brief summary of everything that has happened since the last...

Brief summary of everything that has happened since the last...

Brief summary of everything that has happened since the last...

Sep 18, 20236 min read

To cope, how do you do it?

Feb 4, 20232 min read

MRI of Freja's back and an emergency visit for my eyes

MRI of Freja's back and an emergency visit for my eyes

MRI of Freja's back and an emergency visit for my eyes

Feb 4, 20234 min read

New year, new challenges

New year, new challenges

New year, new challenges

Jan 13, 20233 min read

Miss pink with her new glasses

Miss pink with her new glasses

Miss pink with her new glasses

Nov 24, 20223 min read

The trip to Gothenburg for the second eye

The trip to Gothenburg for the second eye

The trip to Gothenburg for the second eye

Oct 30, 20227 min read

Isolate yourself while waiting for Sahlgrenska next week!

Isolate yourself while waiting for Sahlgrenska next week!

Isolate yourself while waiting for Sahlgrenska next week!

Oct 20, 20221 min read

From emptiness to a little revenge!

From emptiness to a little revenge!

From emptiness to a little revenge!

Oct 20, 20224 min read

Being your own doctor as usual!!!!

Being your own doctor as usual!!!!

Being your own doctor as usual!!!!

Oct 12, 20223 min read

Gothenburg

Gothenburg

Gothenburg

Oct 12, 20221 min read

This wait...

This wait...

This wait...

Oct 6, 20222 min read

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